Nouvelles
du Phare

The voice of the Lighthouse and our accomplished partners

In the past few months, the Lighthouse, its employees, and its partners were present in different scenes of writing articles and conference presentations. Here is a sneak peek: 

Support through Art for Seriously Ill Children in a Pediatric Palliative Care Home

This article, written by our partner Mona Trudel from the Visual and Media Arts School of the Université du Québec à Montréal (UQAM), presents partial results of a participatory research study held from 2008 to 2011 at Maison André-Gratton of The Lighthouse Children and Families. For this study, art students from UQAM conducted art activities with seriously ill children. The study’s objectives were to better understand the practices developed for this setting and to determine what our students take away from the experience. Modeling of the practice of Support Through Art in a pediatric palliative care home reveals both the complexity of the experience and ways to consider its positive aspects in spite of certain difficulties. A qualitative study allowed us to identify the benefits of the experience for the art students, who will go on to careers as visual artists, performers, or art educators.

Reference : TRUDEL, M. Support through Art for Seriously Ill Children in a Pediatric Palliative Care Home. The Canadian Review of Art Education, Volume 39, 2012.

To die in a biotech era

Progress in medicine, complexity of diseases, and the entire biotechnology are great challenges to clinical practitioners, researchers, and of course, those who live in these situations on a daily basis. Health and medicine are progressed by these advancements such as making breakthroughs and putting up new challenges, especially when an end of life is inevitable.

The moments of end of life have always carried a special symbolic meaning. Associated with them are rituals and beliefs - themes that are dear to humanities and social sciences. However, deaths in hospitals fit in this rite of passage differently since we adapt to the process of knowing “how to die”.

In this book, health professionals and social scientists discuss this sensitive topic with all the know-how, ethical, medical, philosophical, and anthropological research and thoughts. Intended for all individuals – parents, researchers, social workers and health professionals – it covers a wide range of opinions about the theme of deceasing in the biotechnological era. Different voices address the profound questions of ceasing active treatments with arising reflections, nourishing feelings, writings, and experiences of clinicians and researchers. These contributions offer a reflexive and informed medical practice which makes it human-centered.  

The book, edited by the anthropologists Sylvie Fortin and Marie-Jeanne Blain, contains articles of many authors, including the medical director of the Lighthouse, Sanja Stojanovic and his colleague Michel Duval, who end the book with a tale. 

Presentation of the Lighthouse at the Canadian Hospice and Palliative Care Conference
(Canadian Hospice and Palliative Care Association, Ottawa, 30-31 oct. 2013)

The Lighthouse Children and Families attended on October 30th  the First Pediatric Symposium, held in Ottawa,  day one of the Canadian Hospice and Palliative Care Conference. 120 professionals in pediatric palliative care from across Canada heard talks including:

Deployment of a volunteer in-home respite service for children with life-limiting conditions in remote Quebec regions presented by Janet Forsyth, Community Organiser at The Lighthouse. She discussed the successful Montreal-based innovation and why play is so beneficial to sick kids, hurdles to upscaling the service, the early needs analysis and project design, how distant partners in eight regions were approached, results to date, blockbuster myths encountered in Quebec with regard to palliative care for children, challenges faced by organisations serving adults in palliative care during development of  a new service geared to children, and adaptations made by every department of the Lighthouse in adjusting to different regional contexts. The bright, colourful presentation was illustrated with sunny photos of Lighthouse children happily interacting in play.