The Lighthouse, Children and Families’ services are intended for seriously ill children that are aged 18 years and under, who are registered with the Régie de l’assurance maladie du Québec (RAMQ) and:
- Are followed by a palliative care team in a health care facility; or
- Meet the palliative care criteria defined and classified under the Standards of Practice for Pediatric Palliative Care;
- Meet the Lighthouse’s eligibility criteria.
Children and families are eligible for the Lighthouse’s services as soon as a potentially fatal disease is diagnosed. In conjunction hospital health care services, they can apply for respite care services at the Lighthouse.
These services are free of charge (with the exception of medication) thanks to financial support from the ministère de la Santé et des Services sociaux, Montreal, Laval and Montérégie Health and Social Services Agencies, Sainte Justine University Hospital Center, Montreal Children’s Hospital at the MUHC, as well as several donors and partners.
For more information or to apply for our services, please contact a liaison nurse at 514 787-8801.
Standards of Practice for Pediatric Palliative Care – Groups 1 to 5
Children with a health condition for which curative treatment is possible. Palliative care may be necessary when the outlook is uncertain or treatment is inefficient.
Examples: cancer, severe liver, cardiac or kidney impairment.
Children with a condition where premature death is unavoidable. In some cases intensive care is necessary to extend their life expectancy or to help them enjoy normal activities for children their age.
Examples: cystic fibrosis, muscular dystrophy.
Children with a progressive disease with no hope of recovery. Treatment is strictly palliative and can extend over several years.
Examples: Batten Disease, mucopolysaccharidoses.
Children with severe neurological conditions that lead to poor health and an increased risk of complications. Their health can deteriorate unexpectedly, although their condition is not considered progressive.
Examples: accidents leading to brain trauma, severe forms of cerebral palsy.
Newborns with a very limited life expectancy.